I raise awareness, educate and advocate for people living with rare and invisible diseases, having a few myself. Along with all this, I’ve been suffering from chronic dry eyes since my early teens.
I work mostly as an expert patient, public speaker, and owner of Ma vie de zèbre (My Zebra Life), a blog now turned a website that I started in 2013 because I couldn't find much information in French (and none relevant to Québec) about Ehlers-Danlos syndromes –the only diagnosis I had at the time– and I wanted to change that.
I’ve had the chance to be asked to share my story and my opinion in the media over the years, be it through newspapers, TV or radio interviews, had stories published online and in a book, and was interviewed for a podcast.
I’m also very active (mostly in French but also in English) on Twitter and as Ma vie de zèbre on Facebook and Instagram.
I'm a patient partner as well, involved on various committees, and doing things like help change policies, co-create surveys, educate future healthcare professionals, and much more.
I used to be a freelance translator (in French and English) and studied in arts and literature as well as in event organization. In addition, I worked many years in show business (on stage, management, and production) and have a bachelor's degree in psychology.
My atypical life experience gives me a different vision that I love to share with people and hopefully inspire, reminding others that life's obstacles are not obstacles to happiness!
Click here to read all of Annie-Danielle's articles on ChronicDryEye.net.